Health, Marketing and Communications, Membership Organizations and Associations, Nonprofit and Social Impact

Vice President, Marketing and Communications

  • Muscular Dystrophy Association
  • Remote
About Muscular Dystrophy Association

Muscular Dystrophy Association is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and related neuromuscular diseases. For over 70 years, MDA has led the way in accelerating research, advancing care, and advocating for the support of our families. MDA’s mission is to empower the people we serve to live longer, more independent lives.

Here are the ways they are helping achieve these goals so families can live longer and grow stronger:

  • Innovations in Science: MDA takes a big-picture perspective across the full spectrum of neuromuscular diseases to uncover breakthroughs that accelerate treatments and cures.
  • Innovations in Care: MDA Care Centers offer families best-in-class, comprehensive care from a wide variety of health care specialists at one location on the same day, while their trained information specialists and educational resources are available to offer guidance and support through every step of the treatment journey.
  • Professional Education: MDA offers a series of educational programs developed for clinicians and specialists who manage and treat individuals with neuromuscular disease. The Medical Education team has partnered with the country’s top thought leaders and experts to create a series of educational programs including CME certified grand round webinars, peer-to-peer educational slide decks and case studies.
  • Community Education: MDA offers programs and resources to help educate all people about the fundamentals of neuromuscular disease.
  • Advocacy: MDA is dedicated to advocating for national policies and programs that support families with neuromuscular diseases by accelerating the development of therapies and cures, facilitating early diagnosis and treatment from day one, ensuring access to critical support, and promoting policies that safeguard independence for people living with disabilities.

Every year, 35,000 individuals, kids and adults, receive treatment at MDA’s nationwide network of more than 150 MDA Care Centers. These treatments are vast and far reaching including: assistance with durable medical equipment to help individuals maintain their independence, the MDA Young Adults Programs are focused on empowering a new generation of young adults who — thanks to medical and technological advances — are living into adulthood, and MDA’s 75 week-long Summer Camps for children living with muscular dystrophy. MDA also provides annual occupational, physical, respiratory and speech therapy consultations to countless individuals.

To learn more about the Muscular Dystrophy Association, please visit their website.

The Opportunity

Muscular Dystrophy Association is seeking a proven marketing and communications leader with a track record of creating and implementing strategy across and within a rapidly scaling organization. The Vice President, Marketing and Communications (VP MarCom) will contribute to the growth of the MDA through the development, integration, and enhancement of its marketing communications efforts. The VP MarCom will provide strategic leadership and direction for all facets of Marketing and Communications management to ensure that all Marketing and Communications programs and initiatives are integrated, aligned and effective in supporting the MDA’s vision, mission, goals and objectives.

As a member of the senior leadership team, the VP MarCom reports directly to the President and CEO and collaborates with all members of the team to align the Marketing and Communications agenda with the strategic objectives of the organization. They will collaborate with high visibility across teams, including resource development, research, finance, and the executive team.

The Vice President Marketing Communications (MarCom) is responsible for planning, development, and implementation of all the Organization’s marketing strategies, communications, and community relations activities, both external and internal. This leader directs the efforts of the marketing, communications staff, and coordinates at the strategic and tactical levels with the other functions of the Organization. Serving as a member of the leadership team, the VP MarCom will strive to elevate the MDA brand, and promote the mission, organizational values, and vision across diverse audiences.

Key to the success of the Vice President of Marketing and Communications, they will be responsible for:

  • Stewardship and growth of the MDA brand marketing and communication function, which play a critical role in protecting their image, reputation, and optimization of resources.
  • Increasing brand awareness and MDA’s valued reputation to build a strong network within with internal and external stakeholders.
  • Overseeing the planning, development and execution of the organization’s marketing and strategic initiatives that range from creative influence to business strategy.
  • Building a high performing Marketing and Communications team with plans and processes to ensure for organizational and departmental effectiveness and brand excellence.  
  • Creating an overall marketing communications strategic direction for the brand and direct the implementation of key strategic initiatives in partnership with Development, Mission, Multi-Channel Marketing, Donor/Foundations and Research.
  • Maintaining the relationship between the organization and the public, inspiring people to join a volunteer network or participate in the funding effort to support our organization’s programs.
  • Understanding the importance of storytelling and data informed writing to demonstrate and differentiate our mission impact and outcomes for partners through presentations, annual reports, positioning statements and other branded content.
  • Providing communications programs, tools, and updates that staff and volunteers across the U.S. use to capably tell our story and promote our programs locally.
  • Directing content on printed, digital, and electronic communications materials. Enlisting others in the organization who support the development of these, especially Creative Services, Community Education, Digital Marketing and Operations.
  • Overseeing the development of template materials that can be scaled across the organization and adopted at a local or department level while maintaining brand consistency, compliance, and excellence. 
  • Supervising staff marketing communications to achieve key strategic objectives and best practice tactics through first-rate delivery and execution of content, programs, and mission. 
  • Utilization of the Salesforce platform as MDA’s primary tool for all executive and team updates. Data is required to be timely and accurate, as the integrity of the data will inform budget, forecast, and strategic planning decisions.
  • Leading a team in a fast paced, evolving, fully remote environment and staying abreast of relevant developments to inform business decisions and/or manage potential business implications.
Candidate Profile

The Vice President of Marketing & Communications is a remote role, and the position does not require relocation.  The ideal candidate will have the following professional and personal qualities, skills, and characteristics:

A Strategic and Creative Storyteller

The VP MarCom will have an understanding of how to advance the mission and vision of MDA by creating highly effective, integrated communication strategies. With a clear sense of ownership, accountability, and collaboration, the VP MarCom will be experienced crafting and leading messaging, themes, and techniques that resonate with a wide range of individuals and organizations in the MDA community and beyond. This leader will have demonstrated experience in setting and implementing innovative communications strategies in complex organizations and will be capable of integrating various communications elements into a cohesive brand narrative. They understand how to build formal and informal collaborations and how to collectively amplify perspectives in a world of fast-paced communications. They are analytical and data-driven, able to conceptualize and analyze both problems and solutions and identify key metrics that will help MDA work towards its strategic objectives. They will leverage their understanding of the organization and its current programs and culture in order to develop a solution-oriented approach to creating a communications function that taps into the power and talents of the organization as a whole.

A Communications Expert, Elevating MDA’s Brand and Mission

The VP MarCom will drive and implement an integrated strategic communications plan by audience and by channel for the organization. With an ability to identify the right message and delivery to cut through a crowded communications space, the VP MarCom will strategically position MDA as a thought leader and change maker, crafting stories and narratives to share externally across various channels. The VP MarCom will be a skilled writer and editor with extensive experience in all forms of corporate and executive communication with the ability to communicate complex information effectively to all levels of staff, management, and external audiences. Adept at forming and maintaining external partnerships and networks, this leader will have a proven ability to foster and strengthen cultures rooted in collaboration, compassion, and professionalism. The VP MarCom will exhibit a wide-ranging curiosity and will be deeply committed to improving access and information regarding the critical services MDA provides.

Relationship Builder and Collaborator

The VP MarCom will possess the ability to promote a powerful sense of shared community, purpose and engagement across their team, MDA and more broadly. The VP MarCom must be able to build and sustain relationships at multiple levels internally and externally. The VP MarCom will have strong working relationships with key leaders and be a proactive, transparent and persuasive communicator who can deal effectively with people of different philosophies, backgrounds and cultures. This leader will be inclusive, allowing for the building of consensus and recognition of teamwork. It is imperative that they foster an atmosphere of collaboration and partnership across the organization. The VP MarCom will understand the need to learn the history and culture of MDA and appreciate the complexities it faces.

Passion for the Mission

The VP MarCom will embody the values and mission of the Muscular Dystrophy Association and as a result, will inspire and motivate others to push MDA’s vision forward in a collaborative manner. An empathic, confident leader, the VP MarCom will treat others with respect. They will lead by example, understanding that at times, empathy is an essential quality. The ideal candidate will understand the healthcare landscape and will have an eye consistently focused on the future and how to best adapt the organization to its changing environment. The VP MarCom will be an individual of unquestioned integrity, ethics and values; someone who can be trusted without reservation.


  • Bachelor’s degree required, preferably in marketing, communications, public relations, or related field.
  • Minimum of 10 years of marketing experience, including at least three years in a senior management role in a matrixed environment and at least five years supervising staff.
  • Background in healthcare, corporate philanthropy, agency and/or nonprofit setting, preferably for a nationwide organization with prominent brand preferred.
  • Diverse spectrum of marketing communications experience, including collateral development, PSA support and paid advertising, direct marketing, digital communications, publications, and consumer research preferred.
  • Prior work experience directing/managing outside agencies, particularly in creative development and media buying.
  • Experience managing or using CRM system to drive communications strategies.
  • Strong and effective leader and counselor with a documented track record of success helping organizations build prominent nationwide brands.
  • Impeccable written and verbal communications skills, with an extensive portfolio of published work.
  • Disciplined planner who knows to chart the proper course first, then produces high quality marketing communications plans and materials that enable successful outcomes.
  • Highly collaborative and strong consensus builder; capable of exercising positive influence in driving outcomes where formal authority might not exist.
  • Outstanding interpersonal skills to represent us with excellence in the C-suite of our corporate partners, with a prominent outside Board, and with our executives.
  • Excellent project management skills and client-centered orientation. 
  • COVID 19 vaccination required.

The salary range for this role, as determined by the Board of Directors, is $180,000 – $200,000 based on experience. Muscular Dystrophy Association provides competitive benefits including health, dental, vision, life, time off, holidays, and a 403(b) plan.


MDA is an Equal Opportunity/Affirmative Action employer. All qualified applicants will receive consideration for employment without regard to race, color, religion, sex, national origin, disability, or protected veteran status.


Koya Partners, the executive search firm that specializes in mission-driven search, has been exclusively retained for this engagement Zack Reynolds & George Theotokatos are leading this search. To make recommendations or to express your interest in this role please email All nominations, inquiries, and discussions will be considered strictly confidential.

About Koya Partners

Koya Partners, a part of Diversified Search Group, is a leading executive search and strategic advising firm dedicated to connecting exceptionally talented people with mission-driven clients. Our founding philosophy—The Right Person in the Right Place Can Change the World—guides our work as we partner with nonprofits & NGOs, institutions of higher education, responsible businesses, and social enterprises in local communities and around the world.

Koya is an equal opportunity employer fully committed to creating an environment and team that represents a variety of backgrounds, perspectives, styles, and experiences. We encourage all to apply because we believe a diversity of voices leads to better discussions, decisions, and outcomes for everyone. Koya does not discriminate on the basis of race, color, national origin, religion, sex, disability, age, sexual orientation, military status, veteran status, genetic information, gender identity, or any other characteristic protected by applicable federal, state, or local law.

For more information about Koya Partners, visit

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